Rights Under Siege The 21st Annual Rights Conference of the National Association for Rights Protection and Advocacy Thursday, November 21, 2002, through Sunday, November 24, 2002 DoubleTree Lloyd Center Hotel, Portland, Oregon Note: This is a web version of excerpts of the NARPA 2002 Conference printed program. All times and room assignments for events are presented here exactly as they appear in the final printed program. However, for this version, formatting has been altered for web presentation, and this an incomplete version of the actual printed program, which includes workshop and event descriptions and presenters' biographies, most of which are also available elsewhere on NARPA's web site.
	Table of Contents Doubletree hotel floor plan Welcome Schedule at a Glance Thursday, November 21, 2002 12 Friday, November 22, 2002 12 Friday evening Saturday, November 23, 2002 18 Saturday evening Sunday, November 24, 2002 24 Brief Biographies of Presenters, Panelists, and Facilitators 25 (not yet added)
	NARPA Mission Statement NARPA is dedicated to promoting those policies and pursuing those strategies that represent the preferred options of people who have been labeled mentally disabled. NARPA is committed to advocating the abolishing of all forced treatment laws. NARPA believes the recipients of mental health services are capable and entitled to make their own choices and they are above all, equal citizens under the law. To the extent that the recipients and former recipients may need assistance to support or express or achieve their preferences, NARPA is committed to promoting rights protection and advocacy which focuses on both the right to choose and the specific choices of those who request assistance. Therefore, NARPA's fundamental mission is to help empower people who have been labeled mentally disabled so that they may learn to independently exercise their legal and human rights.
		NARPA Board of Directors
	Pat Risser, President, Oregon Susan Stefan, Vice-President, Massachusetts Laurie Ahern, Vice-President, Massachusetts				Judi Chamberlin, Secretary, Massachusetts Tom Behrendt, Treasurer, Conecticut Ron Bassman, Past President, New York
	Celia Brown, New York Dennis Feld, New York Pearl E. Johnson, California Sonja Kjaer, Washington Darby Penney, New York
					Laura Prescott, Massachusetts Harvey Rosenthal, New York Phil Schulman, Oregon Bill Stewart, Kentucky Laura Ziegler, Vermont
	Administrator and Conference Coordinator: Anne Krauss, New York

	Schedule at a Glance			Thursday
		Rights Under Siege The National Association for Rights Protection and Advocacy's 21st Annual Conference November 21 - 24, 2002, Portland, Oregon Welcome to the National Association for Rights Protection and Advocacy's 21st Annual Conference, Rights Under Siege. Once a year, NARPA works hard to produce an educational conference with outstanding faculty and workshops where we can learn from and share with colleagues and come together as a community of people committed to social justice. Through this annual conference and NARPA's other educational activities, including our newsletter, The Rights Tenet, and our web site, located at www.narpa.org, NARPA works to build a learning and advocacy community throughout the United States and abroad, and to support a network of disability rights advocates. NARPA members make formal presentations at conferences throughout the year, promoting and providing information regarding rights protection and advocacy. NARPA acts as Amici in cases related to our mission of equality under the law for people who have been labeled mentally disabled. NARPA has been instrumental in providing testimony and background information on the passage and reauthorization of the Protection and Advocacy Legislation, and has been involved in the public policy debate surrounding a wide variety of issues, including advocating for fully informed consent, against involuntary treatment and outpatient commitment, and calling for the fulfillment of the Olmstead promise of independence and self-determination for people with disabilities. If you are new to NARPA, we hope that our conference will re-energize you, and that you will join our community of advocates who look forward to the NARPA conference each year as an opportunity to renew old friendships and to meet new people who share our passion and concern. Please Note: Remember to bring your meal tickets with you for breakfasts and luncheons. Smoking Policy: Please refrain from smoking in all meeting rooms and hallways. A number of people attending this conference are extremely sensitive to smoke and have serious reactions when exposed! We have allotted up to one-half hour breaks between most sessions which should allow you enough time to go outside and smoke. You may smoke only outside or in your designated smoking room. Another Request: Please refrain from wearing perfumed items at the conference as many people have chemical sensitivities. We are greatly concerned about the health of all participants. Thank you. Schedule at a Glance Thursday, November 21 5:00 - 6:45 p.m. Registration Holladay Foyer 6:45 - 7:15 p.m. - Multnomah Room Welcome: Pat Risser, NARPA President Janine Delaunay, Director, Oregon Disabilities Commission Bob Joondeph, Director, Oregon Advocacy Center 7:15 - 8:30 p.m. Keynote: Sustaining Hope in an Age of Denial Multhomah Room Joanne Greenberg, author Gail Hornstein, Ph.D., Prof. of Psychology, Mt. Holyoke College Introduction: Ron Bassman, Ph.D., past NARPA President 8:30 - 10:00 p.m. Reception and Buffet (Holladay Room)

	Schedule at a Glance				Friday
		Friday, November 22 7:00 - 8:30 a.m. Continental Breakfast (Multnomah Room) 8:30 - 10:00 a.m. Keynote: Mad in America Holladay Room Robert Whitaker, journalist and author of Mad in America Introduction: Judi Chamberlin, NARPA Secretary 10:00 - 10:30 a.m. Refreshment Break 10:30 - 12:00 noon Workshops I Three Sisters An Ongoing Call to Legislative Action: Stop the Mass Drugging of Our Children John Breeding, Ph. D., Director, Texans for Safe Education Mt. Bachelor Deinstitutionalizing the Community: The Next Challenge Ira Burnim, J.D., Legal Director, Bazelon Center for Mental Health Law Broadway Pathologizing Lesbian, Gay, Bisexual, and Transgender People: Homophobia and Transphobia in the Mental Health System Shannon Minter, J.D., Legal Director, National Center for Lesbian Rights Susan Aranoff, J.D., of the Connecticut Legal Rights Project Jan Costello, J.D., Professor of Law, Loyola Law School Weidler/Halsey Documenting the History of Our Movement: Oral Histories Darby Penney, Director of Historical Projects, NYS OMH (moderator) Oryx Cohen, Support Coalition International Oral History Project Steven Periard, New York's C/S/X Oral History Project Leah Harris, SCI Oral History Project Celia Brown, Director of Peer Specialist Services, NYC Field Office of Mental Health, and NARPA Board Member Hawthorne/Sellwood Emergency Rooms Susan Stefan, J.D., of the Center for Public Representation Ross Island/Morrison The Fight Against Forced Treatment: A discussion on the recent battles against expanding involuntary treatment in California and Maryland Sally Zinman, Executive Director, California Network of Mental Health Clients Laura Cain, J.D., of Maryland Disability Law Center Kathie Zatkin, J.D., MSW, System Liaison, Alameda Co. Network of Mental Health Clients Noon - 1:30 p.m. Luncheon Pacific Northwest Ballroom Luncheon Keynote Presentation: The Power of the Powerless Susan Stefan, J.D., The Center for Public Representation and NARPA Vice President Introduction: Pat Risser, NARPA President 1:30 - 3:00 p.m . Workshops II Three Sisters Room Cultural Competency: Recognition of Recovery in Diverse Cultures Jacki McKinney, National People of Color Consumer/Survivor of Network Celia Brown, Director of Peer Specialist Services, NYC Field Office of Mental Health, and NARPA Board Member Mt. Bachelor Room Proposals in Congress to Amend the ADA: What Advocates Should Know Ira Burnim, J.D., Legal Director, Bazelon Center for Mental Health Law Broadway Room New Developments in the "Bundling" of Housing and Services Michael Allen, J.D. of Bazelon Center for Mental Health Law Weidler/Halsey Ethical Issues in Advocacy and Legal Representation of Child and Teen Clients Jan Costello, J.D., Professor of Law, Loyola Law School Hawthorne/Sellwood Understanding Big Pharma Loren Mosher, M.D., Soteria Associates Robert Whitaker, journalist and author, Mad in America Ross Island/Morrison Recognizing and Overcoming Internalized Oppression Pat Risser, Office of Consumer Technical Assistance Training Associate and NARPA President 3:00 - 3:30 p.m. Refreshment Break 3:30 - 5:00 p.m. Workshops III Three Sisters Ethical Dilemmas: Are We Rationalizing Away Our Rights? Coercion as consent and other disturbing trends Kathie Zatkin, J.D., MSW, System Liaison, Alameda Co. Network of Mental Health Clients Mt. Bachelor Ethnic Psychopharmacology Regina Hill, J.D., of the Center for Public Representation Broadway Legal and Clinical Perspectives on Eliminating the Deadly and Psychologically Damaging Practice of Restraint and Seclusion Susan Aranoff, J.D. of the Connecticut Legal Rights Project Laura Cain, J.D., of Maryland Disability Law Center Maggie Bennington-Davis, M.D., Medical Director, Salem Hospital Rupert Goetz, M.D., Medical Director, Clackamas Co. Weidler/Halsey "Breaking the Chains" video presentation and discussion Lisa F. Daniels, Reading Memorial High School, Reading, MA Hawthorne/Sellwood Cross-Disability Coalition Work Andy Imparato, J.D., President, American Association of People with Disabilities Chris Griffin, Disability Law Center, Boston MA Ross Island/Morrison Mental health courts Tammy Seltzer, J.D., of Bazelon Center for Mental Health Law Friday Evening Schedule: 5:30 p.m. Come Make Your Voice Heard: Testify to the The White House New Freedom Commission on Mental Health Hawthorne/Sellwood Room Dan Fisher, M.D., Ph.D., White House New Freedom Commissioner, will hear and record testimony, and ensure commission members receive the testimony. Dan Fisher, a member of the commission, will hear and record testimony from NARPA participants and ensure commission members receive the testimony. Testimony should focus on recommendations to help people labeled with mental illness to recover and lead productive, meaningful lives in the community as stated as the executive order of the commission: "The Commission shall focus on the desired outcomes of mental health care, which are to attain each individual's maximum level of employment, self-care, interpersonal relationships, and community participation." The commission also wants examples of successful consumer/survivor-run programs and activities which help others to recover.   7:00 - 9:00 p.m. Friday Evening Oral History Open Forum Three Sisters Room Moderator: Darby Penney, Historical Projects, N. Y. State Office of Mental Health Collecting oral histories of people's experiences in the mental health system is an important way to document individual human rights abuses as well as systemic problems. Oral histories can also serve to document the history of the consumer/survivor/ex-patient (c/s/x) movement. Many c/s/x report that giving an oral history can be a cathartic and empowering experience. This open forum will provide c/s/x with the opportunity to present their oral histories before a group; for those who wish, their oral history can be audiotaped or videotaped. Because of time limitations, people are asked to limit their presentations to 15 minutes. 8:00 - 10:00 p.m. Friday Evening Movie Screening: 41 days Broadway Room Facilitator: Laura Ziegler, NARPA Board Member 41 days is a rough cut of an unfinished film by Richard Cohen. The title refers to the 41 day "power outage" in Berkeley during the time that city's voter approved ban on electroshock was in effect. The film documents the earlier days of the movement for human rights and against psychiatric oppression, and includes interviews with activists Leonard Roy Frank and Ted Chabasinski and footage from demonstrations.

		Schedule at a Glance	Friday/Saturday
	Saturday, November 23 7:00 - 8:30 a.m. Continental Breakfast (Multnomah Room) 8:30 - 10:00 a.m. Keynote Presentation: On Desolation Row Holladay Michael Perlin, J.D., Professor of Law, New York Law School Introduction: Dennis Feld, NARPA Board Member, New York 10:00 - 10:30 a.m. Refreshment Break 10:30 - Noon Workshops IV Three Sisters The "International Convention on Disability" and Our Human Rights Tina Minkowitz, J.D and Celia Brown, NARPA Board Member Celia Brown, Director of Peer Specialist Services, NYC Field Office of Mental Health, and NARPA Board Member Mt. Hood Godinez v. Moran and Trial Competencies: Exploring New Frontiers Michael Perlin, J.D., Professor of Law, New York Law School Broadway Taking Back Our Lives: Organizing Campaigns Involving Employment, Media, and Programming Ron Schraiber, Director of Consumer Affairs, Los Angeles Co. Dept. of Mental Health Weidler/Halsey Lost Cases, Forgotten Lives: The Willard Suitcases Darby Penney, Director of Historical Projects, N. Y. State Office of Mental Health Peter Stastny, M.D., Associate Professor of Psychiatry, Albert Einstein College of Medicine Hawthorne/Sellwood Ethical and Policy Issues in Human Subject Research Patricia Backlar, Ph.D., Research Associate Professor of Bioethics, Portland State U. Loren Mosher, M.D., Soteria Associates Robert Whitaker, journalist and author, Mad in America (discussant) Ross Island/Morrison Implementing a Pace/Recovery Philosophy Laurie Ahern and Daniel Fisher, M.D., Ph. D. Co-Directors of the National Empowerment Center 12:00 - 1:30 p.m. Luncheon Holladay Room Luncheon Keynote: Even a Broken Watch is Right Twice a Day Kermit Brown, Human Rights Officer, Massachusetts Dept. of Mental Health Introduction: Susan Stefan, J.D., of the Center for Public Representation and NARPA Vice President 1:30 - 3:00 p.m. Workshops V Three Sisters Recent Developments in Mental Health Law Susan Stefan, J.D., of the Center for Public Representation and NARPA Vice President Mt. Hood Twelve-Step Coercion: Legal and Ethical Issues Linda Sisson, R.N. Broadway Resiliency Skills for Surviving the System and Making Things Better Al Siebert, Ph.D., author of The Survivor Personality Weidler/Halsey Dispatches from the DD Front Mayer Shevin, Ph.D., Facilitated Communication Institute Associate Lisa A. Lieberman, MSW, LCSW, Board Member, Autism National Committee Ross Island/Morrison Establishing Trauma-Free Care Lyn Blackshaw, Ph.D., of Oregon Mental Health and Addiction Services Janice Perciano 3:00 - 3:30 p.m. Refreshment Break 3:30 - 5:00 p.m. Workshops VI Three Sisters Role and Responsibilities of the Advocate Kermit Brown, Human Rights Officer, Massachusetts Dept. of Mental Health Mt. Hood The Right to Effective Treatment Joanne Greenberg, author Gail Hornstein, Ph.D., Prof. of Psychology, Mt. Holyoke College Broadway A New Vision of Public Mental Health: Creating a Legally Enforceable Entitlement to Voluntary Mental Health Services and Supports Michael Allen, J.D. of Bazelon Center for Mental Health Law Weidler/Halsey Evolving Standards of Dangerousness in Forensic Commitment Cases Dennis B. Feld, J.D., Mental Hygiene Legal Service, NY and NARPA Board Member Kim L. Darrow, J.D., Mental Hygiene Legal Service, NY Hawthorne/Sellwood Psychiatric Advance Directives: Solution or Hazard? Patricia Backlar, Ph.D., Research Associate Professor of Bioethics, Portland State U. Michele Magar, J.D., Magar & Milstein Ross Island/Morrison People's True Freedom Commission: Resist Bush Administration Attacks on our Rights! David Oaks, Director of Support Coalition International (SCI) Judi Chamberlin, SCI Board Member and NARPA Secretary Mickey Weinberg, MSW, SCI Board Member   Saturday Evening Schedule: 5:30 p.m. Award Ceremony, Raffle, and NARPA Membership Meeting Oregon Room 7:00 - 8:30 p.m. Saturday Evening Movie Screening: Spiegelgrund Broadway Room Facilitator: Peter Stastny, film maker "A film by Angelika Schuster and Tristan Sindelgruber, `Spiegelgrund' is a documentary about victims and relatives suffering from the inhuman conditions in the Viennese reformatory and the children's medical department `Am Spiegelgrund.' Their stories begin during the years of 1940 to 1945, the years of the Nazi education- and euthanasia program and run up to the present days. Typical for the Austrian way to deal with Nazi-perpetrators after 1945 is the career of Dr. Heinrich Gross, psychiatrist and medical director of the children's medical department `Am Spiegelgrund' during the Nazi-era. In 1981 the Viennese physician Dr. Werner Vogt produced legal evidence that Dr. Gross was `involved in the killing of several hundreds of supposed mentally ill children.' Nevertheless he became medical director of the psychiatric institution `Baumgartner Hoehe' after 1945 and the most active psychiatric expert in the Austrian courts in the last decades." - Directors' statement from the movie box   8:30 - 11:30 p.m. Party (Sponsored by Support Coalition International) Multnomah Room Host: Phil Schulman, NARPA Board Member and staff member, Support Coalition International

	Schedule at a Glance				Saturday
		Sunday, November 24 7:00 - 8:30 a.m. Continental Breakfast (Multnomah Room) 8:30 - 10:00 a.m. Keynote Presentation: Who Needs Professional Help? Holladay Peter Davidson, M.D., Medical Director, Department of Community Services, Multnomah County, Oregon Introduction: Bob Nikkel, Community Services Manager, Office of Mental Health & Addiction Services, Oregon Department of Human Services 10:00 - 10:30 a.m. Refreshment Break 10:30 - 12:00 noon Workshops VII Broadway Transcending Medical Model Realities R. Drake Ewbank of SAFE, Inc. Weidler/Halsey Polypharmacy: The Latest Psychiatric Fashion Peter Stastny, M.D., Associate Professor of Psychiatry, Albert Einstein College of Medicine Hawthorne/Sellwood Pearl's Story - A Consumer's Perspective on the Need for Culturally Competent Services Pearl Johnson, County of Los Angeles Department of Mental Health Ross Island/Morrison The investigation of the death of Mejia Poot Stephen Mathieu, J.D., of the Oregon Advocacy Center   Conference discount on airfares from Northwest/KLM Discount on airfares from Frontier Airlines NARPA 2002 Registration form in PDF (Adobe Acrobat) format (96K download) Confirmed and Invited Presenters - NARPA 2002 Workshops NARPA 2002 Schedule Overview NARPA 2002 Detailed Workshop Schedule NARPA 2002 Conference Information - Summer Rights Tenet NARPA 2002 Conference Page NARPA Home