The NARPA Book Club
Books of interest and importance
to NARPA members
CHECK IT OUT!
Confessions of a non-compliant patient by Judi Chamberlin
To Be a Mental Patient
by Rae Unzicker
Mad In America
The Bonkers Institute
2013 Annual Rights Conference
Hartford, CT, September 2013
Conference Materials & Handouts
Line-up of Workshop & Keynote Presentations
Click here for conference schedule
2012 Annual Rights Conference
Cincinnati, OH, September 2012
NARPA's 2011 Annual Rights Conference
Philadelphia, PA, September 2011
2010 Annual Rights Conference:
(with materials and handouts)
Atlanta, GA, September 2010
Choice Not Force
●Recovery and Peer Run Programs
●Force and Coercion Beyond the Institutional Setting
NARPA's2009 Annual Rights Conference:
Phoenix, AZ, September 2009
NATIONAL ASSOCIATION FOR RIGHTS PROTECTION AND ADVOCACY
Click Here for Conference
DoubleTree - Seattle Airport
NARPA‘s mission is to promote policies and pursue strategies that result in individuals with psychiatric diagnoses making their own choices regarding treatment. We educate and mentor those individuals to enable them to exercise their legal and human rights with a goal of abolition of all forced treatment.
NARPA is an independent organization, solely supported by its members. It is a unique mix of people who have experienced psychiatric intervention, advocates, civil rights activists, mental health workers, and lawyers -- with many people whose roles overlap. NARPA exists to to protect people’s right to choice and to be free from coercion, and to promote alternatives so that the right to choice can be meaningful. Read about NARPA's history of human rights advocacy, check out the ADA Case of the Week archives, and more.
Mad In America’s International Film Festival
(October 9 - 12, 2014; Arlington, MA)
will showcase both short and feature-length films from around the world.
This four-day event will feature full mornings, afternoons, and evenings of
films, panel discussions and key speakers as well as an opening night
reception, a closing night dinner and awards gala, a performance of the
highly acclaimed one-woman play “SICK” by Elizabeth Kenny, and possibly a
performance by an up-and-coming musician from Europe.
Visit the official festival site.
Have You Ever Been Suicidal? Your Input Is Sought!
the following: renowned mental health lawyer Susan Stefan is "writing a book
about laws and policies around the world related to people who are suicidal,
and she wants to hear your experiences. What works? What doesn't? What makes
things worse? You can help her by taking this short, anonymous survey. And if you're willing to do an in-depth interview . . . please contact Susan at firstname.lastname@example.org. If the survey link has any hiccups, please let her, or us,
know." At the same time, AttemptSurvivors.com wants to know how you have helped to shift the conversation about suicide in your community! Cara Anna, editor of What Happens Now?, will share the results. To participate, click here.
Council of Disability (NCD) Statement of Solidarity with the Victims of
Police Violence in Ferguson, MO.
□ Read about
An amazing victory for mental health treatment reform activists and Robert Whitaker. On August 28, 2013, National Institute of Mental Health (NIMH) director, Thomas Insel, announced that
psychiatry's standard treatment for people diagnosed with schizophrenia and other psychoses needs to change.
□ Shock treatment:
Ken Kesey hits back at critics of
One Flew Over the Cuckoo's Nest - In January 1964, Ken Kesey wrote the following letter to the New York Times, defending the Broadway adaptation of his novel, its cast, and in particular, responding to the journalists who had criticized the play for its
"unrealistic storyline."¯ Read the letter...
□ Are Psychiatric Medications Making Us Sicker? - Several generations of psychotropic drugs have proven to be of little or no benefit, and may be doing considerable harm.
□ Connecticut Supreme Court Holds Lawyers, Conservators Accountable In Probate Cases: "The ruling has far-reaching implications for our troubled probate court system. It means that a court-appointed lawyer...cannot ignore the wishes of a client."
Robert Whitaker on the New York Times' In Defense of Antidepressants: "... the American public has been treated to yet another dose of misinformation."
Healing Voices, a new film chronicling the lives of individuals experiencing mental health issues and extreme states, is now in production. The film examines mainstream mental healthcare and psychiatry in the United States through the lens of individuals at various stages of their mental health story; it explores the stigma of psychiatric diagnoses, the role of trauma, pharmacology, alternatives to the "one-size-fits-all" medical model, and the power of storytelling in recovery. "Healing Voices" is being promoted on the crowd-funding site Kickstarter. Click here to learn more.
□ NARPA congratulates Disability Rights International Founder and Executive Director, Eric Rosenthal, recipient of the 2012 Public Service Award from the University of Chicago. Eric is a long-time rights activist and NARPA supporter. Read more.
Making a Killing: Clinical trials have become marketing exercises for Big Pharma -- and cash-strapped universities are helping make the sale —
The Sept.-Oct. 2010 issue of Mother Jones sheds light on how drug manufacturers manipulate clinical trials to make their drugs look good - sometimes at the expense of patients' lives.
□ NARPA's statement on the Arizona tragedy
□ Disability Rights New Jersey has filed a federal lawsuit regarding the involuntary administration of medication to psychiatric patients in New Jersey's public and private hospitals. The lawsuit alleges that the current procedures, which do not provide for an independent review in the event of a challenge to the need for involuntary medication, violate individual rights and fail to conform to present standards of good clinical practice.
Click here for of the complaint.
Click here for the opinion denying protective order.
Click here for the opinion regarding motion to dismiss.
UN Calls Shock Treatment at Massachusetts School "Torture" - See ABC News' report and read Mental Disability Rights International's full report on the Judge Rotenberg Center. Update (May 2011): Founder and director of Massachusetts “Shock School” resigns after being indicted on criminal charges. MDRI's Report concludes with an "urgent appeal" to the United Nations Special Rapporteur on Torture, demanding the US end the torture of people with disabilities immediately. And see the Op-ed in the Washington Post, "Disabled children at Mass. school are tortured, not treated" (10/2/10).
□ Pfizer too big to nail — Federal prosecutors say the world’s largest pharmaceutical company is too big to fail. When Pfizer was caught illegally marketing a drug that was taken off the market, the feds agreed to charge a shell company which exists solely for the purpose of pleading guilty and taking the heat off Pfizer. A report from CNN's Special Investigations Unit.
Poor Children Likelier to Get Antipsychotics
- New federally financed drug research reveals a stark disparity: children covered by Medicaid are given powerful antipsychotic medicines at a rate four times higher than children whose parents have private insurance. And the Medicaid children are more likely to receive the drugs for less severe conditions than their middle-class counterparts, the data shows.
□ NARPA joins the California Coalition Advocating for Rights, Empowerment and Services (CARES) in opposition to AB 1569, currently pending before the California Assembly Health Committee. AB 1569 would re-authorize involuntary outpatient commitment under AB 1421 ("Laura's law", referred to as "assisted outpatient treatment" by proponents) for six years and would eliminate all state oversight of such programs. (Click here to download a copy of the CARES letter to the Health Committee Chair.)
Report of the National Council on Disability:
" From Privileges to Rights: People Labeled with Psychiatric Disabilities Speak for Themselves" -- With a
link to the full report as well as information about how to order a free copy.
◄ Kim Darrow (1946 - 2011) ►
Remembering a remarkable lawyer, naturalist, and civil rights hero
□ Confessions of anon-compliant patient
□ Listen to npr Morning Edition story (1/19/10) □ Boston Globeremembrance (1/20/10)
□ Washington Post , New York Times, and □ PRNewswire
□ Crazy Like Us: The Americanization of Mental Illness -
In recent years, American ideas about psychiatric disorders have spread around the globe. Is that really good for the world’s mental health? Read this article by Ethan Watters from the New York Times.
□ Read an essay sharply critical of the psychiatric industry, published in the medical journal, The Lancet.
The article reviews two books: The Myth of the Chemical Cure: A Critique of Psychiatric Drug Treatment by Joanna Moncrieff and Side Effects: a Prosecutor, a Whistleblower, and a Bestselling Antidepressant on Trial by Alison Bass. Read the article here.
□ Read the NY Daily News story, "Kings County Hospital doctors, nurses facing charges in Esmin Green death-by-neglect case." And read the NYC Department of Investigation's report.
□ Listening to Madness -
Why some mentally ill patients are rejecting their medication and making thecase for "mad pride" (a May 2009 Newsweek piece on Will Hall and the Icarus Project)
□ "Tremors in the System: the help you want or the help you get"
- a new 23minute film by Nora Jacobson features long time NARPA member and supporter Marj Berthold and her experiences in the Vermont mental health system.
□ Big Pharma Gone Wild: How Risperdal, a drug meant for treating rare psychiatric disorders, became the seventh best-selling medicine in the world.
□ UN: Forced Psychiatric Treatment is Torture
□ FDA proposal to reclassify electroshock machines - and deem them safe in the absence of scientific evidence. Public comments were due by January 8, 2010. Learn about the FDA docket, find out how to view public comments online, and get additional information here. For background, see "The FDA’s Regulation of ECT (Shock Treatment): A Beginner (or Refresher) Course."
□ Maine's medication law challenged
A new federal lawsuit, filed by the Disability Rights Center of Maine, challenges the constitutionality of a new law that allows patients in psychiatric facilities to be medicated against their will. The lawsuit, which was brought on behalf of an 83 year old woman, alleges that the law violates due process rights guaranteed by the 14th Amendment of the U.S. Constitution; The law fails to provide patients with adequate notice of a hearing or an opportunity to be heard before being deprived of their liberty. The lawsuit also claims that patients may be forced to take drugs that can cause death or have devastating and irreversible side effects, especially in elderly patients. Read more here.
□ Prozac.org: how the pharmaceutical industry works behind the scenes to shape public policy and push drugs.
An article by Ken Silverstein from Mother Jones Magazine.
□ The Needs of People with Psychiatric Disabilities During and after Hurricanes Katrina and Rita: Position Paper and Recommendations - A report of the National Council on Disability, prepared and drafted by Susan Stefan and Ann Marshall of NARPA.